Last night I got slammed. There were crises on both wards, a seemingly endless list of patients to screen for admission to Medicine, and angry emergency room doctors pestering me about why I hadn't seen their patients yet. (You know, because I'd been sitting in my call room eating crumpets and tea all evening.)
I loved it. As much as I wish for quiet nights and dread the sound of my pager going off, I actually prefer the busy nights. I love the sound of my hurried footsteps echoing through empty hospital corridors, the slashes through completed tasks on my to-do list, the TBADM (to be admitted direct to medicine) icon that appears on the EPR every time I admit another patient. I'm always stressed at the beginning of a busy night, worried that I'm not fast enough or competent enough to complete everything, but I quickly settle into my groove and start enjoying myself. There's an incomparable satisfaction that comes from doing the work that you've devoted your life to doing.
Towards the end of the night, as I was entering the orders for my last patient and starting to mentally wind down, I got a desperate page from one of the wards about a patient who was crashing. She was "no codes", so there would be no ICU team to help. This one was entirely on me. My heart and my mind raced as I yelled orders into the phone and then ran up to the ward to lay eyes on the patient. "Airway, breathing, circulation. Airway, breathing, circulation." I repeated these words in my head like a mantra as I ran up the stairs, reminding myself of the algorithms and the processes that guide emergent care.
In the stairwell, mere steps from the ward, I suddenly remembered why the patient's name had sounded so familiar to me. I had seen her previously on a consult service and had been horrified by the severity of disease on her CT scans. The only reason she hadn't been made palliative at the time of diagnosis was the suddenness of it, the need for time to process and come to some degree of acceptance. Entering the room, seeing how sick the patient had become, hearing the screaming of multiple alarms fighting with each other for attention, it became clear that there wasn't any more time.
I'm usually slow to make decisions, taking time to weigh the options and ensure that no detail has been overlooked. I like to think it makes me a good resident, although some might argue that it just makes me slow. But in this situation, there was no deliberation. My role in this situation wasn't to examine or investigate or intervene - it was to ease the passage out of life as much as I possibly could. Orders were placed for morphine and scopolamine, family was called, and the transition to comfort care was made. There was a palpable change in the patient and the atmosphere around her after the decision was made - from panic to calm, almost instantly.
If there's one thing I've come to believe fiercely in over my time in medicine, it's aggressive palliation. I've been witness to many deaths in my training - both good and bad - and there are few things worse than a death that involves unnecessary pain and physical suffering. The worst part of it is that it is often us, the providers of care, who are responsible for not palliating dying patients soon enough or well enough. We're often unwilling to recognize the point at which we run out of options for curing a disease or extending life, as doing so is admitting failure, acknowledging that despite all of our tests and machines and iv bags filled with magic potions we are still limited in what we can do. Even when we acknowledge this reality, we often avoid having the difficult conversations with patients and their families because they make us uncomfortable. And our patients suffer as a result of our cowardice.
When my Dad was diagnosed with melanoma, one of his biggest fears was of the process of dying itself. He had had a lifelong fear of drowning, and he was terrified of gasping for air from the tumours in his lungs. Fortunately, he had a fabulous oncologist who was involved in pain and symptom control who ensured that he rarely suffered physically. And he had two children in medicine, both ardent supporters of palliative medicine, who assured him that he was always in control of his treatment and that we would do everything possible to keep him from suffering. Having seen the difference that this made in the dying process for my Dad, I view it as somewhat of a personal mission to ensure that all of my patients receive this same level of care. While I can't save everyone from dying, I can make the process as bearable as possible.
14 comments:
Thank you for writing this post about the change that overcomes a situation when the care is given to palliative. I think about the patients I have seen suffer over the years and the gradual change to more humane care with hospice care becoming more the norm. My last situation involved a doctor who didn’t want to let go and caused a painful ending for my lung cancer patient. The young woman doctor wanted to “fix” my patient’s depression and Finally ordered a hospice evaluation. Patient died three hours before the eval was to happen. No one wanted to admit that we were actually in a life ending period and it made it hell for my patient.
Thanks for listening to my story. It helps to tell it to a sympathetic ear.
I have no fear of death - just the process. I hope there is someone like you around when I need them.
I, too, think we don't utilize palliative care enough.
I'm curious about what you said- this patient was a 'no codes.' How is this status made in Canada? By the patient/ her medical decision makers or by the medical team, taking note of the severity of the disease?
In the US, I think there's a lot of cases we'd rather palliate, but we don't get to make the code status decisions as members of the medical team.
DNR or "No Codes" in Canada is determined by the patient if compos or otherwise by the patient's surrogate decision makers. Written medical care directives are becoming more common and carrying better legal clout which is VERY helpful when the patient wants to die when the time comes but family want to drag it out.
Table, I was horrified when I got to this sentence in your post, "My role in this situation wasn't to examine or investigate or intervene - it was to ease the passage out of life as much as I possibly could." I was knowing that intervention was absolutely REQUIRED to set the circumstances right - and you intervened to get the treatment shifted to palliation mode. More medical practitioners need to recognise this as a valid medical intervention rather than "giving up".
You did great good, kiddo! I am so sorry that your Dad's experience was part of your learning process - learning as a person rather than as a doc - but so glad to see that you are applying those hard lessons to your patient care.
I hope the doctor treating my gran tonight is as calm and as kind as you are.
It sound slike you may have found your calling :-)
Palliative medicine is one of my favorite specialties. It's one of the few where you can actually focus on making patients and families FEEL BETTER. Sometimes if you do a good job, it can be even more satisfying than "fixing" someone.
(Ever consider geriatrics??)
Great post! I, too, have seen traumatizing death and likewise, heard the comfort palliative care can give to all. You are a credit to the profession.
Medicine may look like all science and skills, but there also is art and "heart" involved--you seem to have a good understanding of that.
It's not the same thing, but it's constantly on my mind with my cat. Her vet is really kind.
Good on ya girl.
p.s. I think availability of crumpets should be in the next PAIRO contract.
I love this post. My own experiences with my parents' illnesses and what I've seen at work have cemented in my mind/heart the importance of palliation.
It's incredibly hard to watch a patient fade away in agony without even a palliative/hospice consult.
I wish that my mother's doctors had presented the option much earlier and I've promised myself that when I'm a physician I won't be afraid to broach the topic with patients and their families.
Lynda - Thanks. I've seen many times that there is a palpable improvement in patients and their families when the change to palliation is made - and I've also seen the incredible suffering that can occur when that change isn't made early enough. I think we need to discuss palliation much more within the medical community and within the world at large so that it becomes an easier transition for both doctors and patients to make.
Eileen - As a patient, there's a lot you can do to ensure that you get the appropriate care at the (hopefully far off) end of life. Writing a healthcare directive, speaking to your family, speaking to your doctor all goes a long way to ensuring that your wishes get carried out.
Erin - As Katydogcrazy said, it's usually the patient/surrogate decision maker who decides when someone is no codes. That being said, there are provisions within Canadian (or maybe just local?) law that allow healthcare providers to refuse to offer "futile" services. As a result, I've seen terminally ill patients made DNR because the ICU refuses to accept them as patients. I'll have to look up the legality of this sometime...
Katydogcrazy - I think we're in absolute agreement in principle even if you disliked my use of the term "intervene". What I meant when I said that was that there was no "intervention" in the traditional sense - no testing or administering life-prolonging medications or doing chest compressions/etc. I agree entirely that it's an active process to transition someone to palliative.
Sharron - Me too. Hope your gran is well.
Daze - It's true...I do feel an element of a "calling" when it comes to palliation. I think that's part of the reason why oncology is moving up my list of potential specialties.
This post brought tears to my eyes. I was too little when my uncle died of throat cancer, but I do hope there was a good measure of palliative care involved. It's funny how most family members that are not around when a loved one dies, asks immediately: "Did they suffer?" but when they are actually around, they push it so hard holding on to the trickle of life still running, and forget about the pain they might be causing. Hard choices though...
It's good to see there are some people brave enough to say "enough!" and help the patient and the family realize that the pain isn't worth it.
OMDG - I haven't done a rotation in palliative yet, but I have one scheduled for February and I'm really looking forward to it. As for geriatrics, I don't think it's my thing. I don't personally enjoy long-term primary care, which is what I think geriatrics essentially is.
AD2B - Aww, thanks!
Kate P - It's true, there is a lot of art to medicine as well, and unfortunately that's something that those of us is medicine often forget. As someone with two feline roommates, I understand entirely what you mean about the vet. My cats' vet is a cat whisperer (she can pick up Hobbes without him making a sound, which not even I can do), and I trust her care so much more because of it.
Medstudentitis - I'd be in support of crumpet availability! Or at least getting food in the cafeteria that isn't boxed or deep-fried. Yeesh.
Kate - I'm sorry that you've had to learn the benefits of palliation from your own personal experience. It's not the way that anyone wants to learn, but it will serve your patients well.
Live - I think it's always hard for a family member to actively decide to let their loved one go, even when it's clear that it's the kindest thing to do for the patient. I think sometimes we as physicians make the situation harder by presenting it as more of a choice (i.e. to continue or stop active treatment) than we should. I personally will make very strong recommendations when I feel it's appropriate to stop care, but I know not all physicians are comfortable doing this.
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