Sunday, July 3, 2011

On Medicine and Mourning - The Post I Meant to Write for Father's Day

"The good thing is, it'll make you a better doctor."

This was the response that I got from an attending after I told her about my father's newly diagnosed melanoma.  I wanted to hit her.  There couldn't possibly be a "good thing" to the fact that my dad, the man who had been there for me since I was born, had been given a life expectancy of six to twelve months.  Or to the fact that my fourth year of medical school, which was supposed to be filled with the excitement of away electives and applying for residency, was instead going to be filled with the uncertainty of when and how my dad was going to die.

Besides, it absolutely wasn't true.  If anything, watching my father die was making me a worse doctor.  It was making me distracted, barely able to focus on what was being said at morning rounds because my head was filled with the results of my dad's latest CT scan or a mental image of the lymph node on his neck that was becoming increasingly swollen with metastatic cells.  It was also making me angry - like the time a patient on my Plastic Surgery rotation complained about how many surgeries he had been through to remove basal cell carcinomas (relatively benign skin tumours) from his face.  "Oh yeah?" I thought bitterly.  "I'm sure my dad would trade his deadly skin cancer for the inconvenience of your stupid little basal cell tumours."  Being a dutiful medical student, I remember choking down my bitterness and muttering encouraging words through clenched teeth before ushering the patient out of my examining room.

And it was causing me so much pain.  Going to work some days was like going out into the world with no skin, vulnerable to every insult, immune to nothing.  While on my emergency rotation, I was assigned a patient with melanoma who had the same doctor as my dad.  As she told me her story - from unexpected diagnosis, to surgery, to one clinical trial and then another - I felt like I couldn't breathe.  Here was my dad's story, so closely mirrored in someone else, and just like with my dad, medicine had nothing to offer.  We could palliate, relieve her physical pain, but there was absolutely nothing we could do to keep her alive or to ease the real suffering of her or her family.

For more than a year - through the seven months before my dad's death and the long months that came after - I hurt for every patient I treated.  Diagnosing a young man, younger than myself, with a terminal brain tumour left me walking around for days raging at the unfairness of it all.  I would show his scan to classmates and attendings, tell them his story, hoping that someone would give me an explanation for how screwed up God must be to make tumours grow in young men's heads.  Months later, in oncology clinic, I felt like vomiting while examining a fungating mass on the breast of a woman born in the same year as I was.  It was all so bloody unfair, and I couldn't let it go.

Fortunately, the mind has strong instincts for self preservation, and it will only allow a person to torture him- or herself for so long.  I vividly remember the moment I started to surface, to come up for air from the bottom of the deep sea of grief that I had been suffocating in for far too long.  I was faced with another sad story - a previously healthy man whose bone marrow was now packed with leukemic cells, a death sentence for someone his age.  If statistics held true, he would have even less time remaining in his life than my dad did at the time of his diagnosis.  Speaking with him and his wife, hearing him ask the question "Why me?" that my dad had asked so many times, I could feel the usual tears welling in my eyes and the lump in my throat growing bigger.  And then, in my head, my own voice, clear as day, said "This isn't about you."

The grief that they're feeling isn't yours; it's theirs.  The shock isn't yours; it's theirs.  This isn't your dad's story, played out one more time; it's their story.  And your role isn't to cry, or to shake your fists at the sky in anger; it's to be a doctor.  

"This isn't about you."  Four words that saved me.  Four words that somehow allowed me to put aside the pain, put aside the grief, and go to work each day and be a doctor.

And now, despite my anger at what the attending said to me in the beginning, her words are beginning to come true.  Having been through what I have, having born witness to my father's suffering, is indeed starting to make me a better doctor.  A few weeks ago, I sat in the same emergency room where I had trained as a medical student, now a first-year resident sitting across from a patient with terminal lung cancer who was mere days away from death.  Where others would've admitted the patient quickly and then left the room, justifying their haste to themselves by thinking of all the other things they had to do before the night on call was over, I was able to sit with him for a few minutes and offer comfort.  Because I had seen how afraid my father was of death, and how alone he was in that fear, I knew to stay with this man and to address his fears as best I could.  It wasn't as good as offering a cure, but it was something.

Edited to add:  This post was recently selected for inclusion in the latest edition of Grand Rounds at Fizzy's Cartoon Guide to Becoming a Doctor.  If you're visiting the blog for the first time, I'd love it if you'd leave a comment so I know who's reading.  Welcome!

22 comments:

medaholic said...

Touching, seeing someone you love leave might not be a good thing, but it certainly has made you a better doctor.

Larissa said...

This is beautiful, and sad, and very moving. I think it's wonderful that the experience has made you a better doctor, and that you see the lessons in even the most painful of times.

NP Odyssey said...

Thanks for sharing, what must have been a tough experience to live through.

When my father died from liver cancer I remember over the months and years following and having to take care of patients with the same type of diagnosis. It was an internal personal pain, but it made me relate better to both the family and patient.

DMH said...

I really enjoyed your post. It's very reflective with a great underlying story. Also, thanks for your comments.

Calliope said...

what an amazing post.
And thank you for being such a great photo friday player!!

The Red Humor said...

Your is an absolutely heart wrenching story from which you have - at a horrible price- seemed to have emerged with an empathy that is fortified by the knowledge that the role you play in other's grief is not causal, but rather ameliorative.

This does not however mean I wouldn't like to totally backhand the author of your opening quote.

The Red Humor said...

Wait. I didn't mean "causal", I mean "commiserative", because of course you didn't think you were responsible for other's grief.

Sorry, those run-on sentences sometimes get away from me. Time to go to bed.

barefootmeds said...

This is so beautiful and touching. I am touched by patient's stories and often feel angry at doctors who don't share that concern. "It's not about you": what a necessary lesson.

Au said...

"It wasn't as good as offering a cure, but it was something." - this line is heartmelting. Thank you.

I'm a cancer survivor myself. Got diagnosed during my 1st year in medical school. I had 3 ex laps and 10 cycles of chemo and got bald.

Now I'm medical intern and my hair has grown long. This is a story I often tell my cancer patients while I put an IV line on them for chemo.

Being able to have that connection with them, albeit brief, is refreshing.

Sarah Glenn said...

Sorry you had to learn this level of compassion in such a horrible way. I'm glad you could turn it into easing the fears of others.

Gizabeth Shyder said...

So sorry for your loss. This is a fantastic post. I find that experience brings empathy, which is very helpful to patients when offered at an objective distance. You are going to hook me into your blog.

JG said...

Thank you for sharing this. I'm afraid that all too often it seems that events like these tend to dull people's empathy rather than tune it. I'm glad to hear stories of physicians who are more in touch with compassion than claiming to maintain objectivity and emotional distance as an excuse to avoid an emotionally uncomfortable interaction.

Anonymous said...

Thank you so much for sharing this. I am an MS3 whose dad has end-stage cancer and I cannot explain to you how much I needed to read this. Thank you.

Solitary Diner said...

Anonymous - I am so, so sorry for what you are going through. I wish I could offer you something better than a few words on a computer screen. If you ever need a sympathetic ear, feel free to email me (doctorintraining16@hotmail.com). Wishing you, your dad, and everyone else who loves him some comfort through this brutal ordeal.

simplysolo said...

I'm so sorry to hear about the loss of your father. I just started reading your blog recently, after you started commenting on mine. I love your writing and you have such a unique perspective. I can't imagine the loss you've been through, but I'm happy you are able to improve other people's lives with medicine (maybe that helps?). Anyway, my thoughts are with you.

The Daze of Whine and Roses said...

...causing me so much pain. Going to work some days was like going out into the world with no skin, vulnerable to every insult, immune to nothing"
I'm an ER nurse. Sitting in Triage right now with tears streaming - I guess this is why we're not supposed to use the internet at work. :-)
I've had a rough go of it lately [mostly my own doing. wrestling with my own demons] and working in the ER has been tough recently - the wrong people in the wrong place. I know you know what I mean. Some days you go home and can't turn it off . . .
"It's not about you" Those 4 words may just save me. Thank you. What a wonderful tribute to your father

Dora said...

i was on my 4th year, just a few weeks into clinical rotations when my brother called me and told me that our dad had seizures that morning and was now in a coma. this had shocked me as he was well when we discussed our plans for his visit with my mom and cousins, while they went on a beach holiday with them. i went home to our province later that day and the next 2 weeks were the worst in my life. i saw him for only a few days and then returned to work, seeing patients, trying to please seniors, while making decisions for my dad that were contrary to the wishes of the other 2 doctors in our family. after 2 weeks, as we were making plans for his step-down care, i was called to come home to say my goodbyes. dad died with all of us around him. barely 3 hours after we buried him, i was on the road again to return to hospital duties. in my mind, i kept replaying the words of my friend, the chief resident of psychiatry who gave this cruel advice: "despite your feelings, you have responsibilities". this mantra worked for a while, i functioned reasonably well. i dind't make huge mistakes, did well on shift exams, even won an award and occasionally got compliments through different rotations. i did not ever break down, no bawling in tears, no sudden calls to my mom or brother about my pain. always i wondered though, when would i have my "break down"? when can i feel my feelings and not have responsibilities? yet i went through cycles of numbness-anger-sadness-numbing, and subsquently lost my faith in many things, including medicine.
after a year, i came home for internship. "healed" i supposed, and was having a good time with medicine and family generally. until, a resident on my mom's staff told me about the time my dad arrived on the hospital. my mom, an internist, had been seeing a patient at the ER, when someone told her our car was approaching. as the wheeler came in, my mom had difficulty identifying the body in fetal position that just arrived. the resident then had to tell her "Dr, it's your husband". all i knew before this was related to me, was that an hour before his seizures, dad had been happy with the new shirt mom bought for him from her recent trip, to apologize "for extending her vacation wiht my brother". i did not know that she actually received him in the ER right after that. medicine is cruel. so many times was i angry that i had to suture the lacerated head wounds of a drunkard who had hit his wife with a bottle, or that men who got multiple gunshots in a fight would survive to actually walk out of the hospital. that there was my dad, a very supportive father who also served society by hearing out and sending those same kind of criminals to rehab--who was on life support. oh the irony.
it has been two years now. i do not know if these experiences will actually make me the kind of physician my attendings and patients compliment me to be. i certainly do not tell them about the struggle to be polite, honest and keep my feelings to myself. it is not about the doctor after all. but sometimes, there are unexpected periods where the patient will help me unknowingly, and i am grateful. still i know, there will be more losses along the way, but also gains. and so i return to study for the boards.
-Dora

Sharp Incisions said...

I came to check out your blog from Agraphia, and this seems like a good post to introduce myself. It's a beautiful post, and I expect those four words of yours to help me in the future - I will undoubtedly have need of them. I am very sorry for the loss of your father.

I'm a medical student who is also usually a solitary diner - I'm married, but live away from my husband and two cats while I'm studying. I definitely miss both the human and feline companionship - and your cats are gorgeous!

I'm really enjoying your blog so far!

Erin, MD said...

Thank you for sharing your story. I lost my father in 4th year medical school and have often struggled with the same issues as I have progressed through residency. I had an attending say the same thing to me, with the same visceral response. However, maybe the loss of my father has made me a more aware and reflective physician. I felt like I was reading my own story.

Audrey1119 said...

Night before my first day at medical school my Mum had a car accident while on a business trip in a third world country. It was horrible. Not being able to be with her, while she was in coma for ten days, with fractures of both femurs, concussion, head fracture, and many other injuries. Hearing her story later, about the hospital not having anesthesiologist so she was half awake and could hear her burning flesh while fixators were put in her legs, not being able to understand what they were saying, lack of basic hygenic conditions... Year before that I watched my grandpa fight with cancer, he had metal tube in his throat, lost half of his weight, I remember when he came from the hospital after two months, I couldn't recongize him... All of it was unfair. In my Mum's case especially because she barely survived and only God saved her from not becoming septic in those conditions. But phsycological trauma will always be there after being so unhumanly treated.
I can't say that I know how it was, for you, but I can imagine. Watching one day my Grandma or parents going through something like that is my greatest fear in life. "This isn't about you." is what really helps. It can never be worse for me than it is for them.

I don't know how what happened with my Mum and grandad affected me as a student and how it will affect me as a doctor, but I know that I can't look patient's fear and pain and be like my classmates, with that small amount of self - preservational cold. I can't. I take their stories home with me, and I only hope it will make me better for my future patients, because it does not do any good to me.
I just found your blog and thank you for writing it and sharing with us.

Live Life Without Fear said...

My dad died of a stroke while we were on vacation. He was fine, having dinner. Fell off the chair, rushed to the hospital and 2 days later, he was dead. This was years ago, I was a kid, but the pain and the shock are still very present.

I apologize for bringing up Grey's Anatomy, but something that Christina said to George when his dad died ringed true for me: "There's a club, the dead dad's club. You can't be in it until you're in it. I'm sorry you had to join the club."

All of us who have lost a father know what that means. You have to experience that pain to know what it's about, there's no other way.

Thanks for your beautiful post. I'm very sorry for your loss and your pain. There's nothing "good" about it. Being able to empathize with your patients is great, and I'm glad you were able to use your experience to help others, but that doesn't mean there was anything good in losing your dad. That attending is ass and I'm impressed you didn't say so to her face.

Julie Lyn Williams said...

it's amazing how much more humane of a physician having the experience of loss has made me. I lost my father during my 1st yr of med school to complications of RA +immunosuppression meds+ community acquired PNA. My brother who was my best friend passed away october of my 4th yr of med school, stage 4 pancreatic neuroendocrine carcinoma, never were able to say much on bx and path end other than "very heterogenous and aggressive" he only made it 8 more months after being dx-ed despite trying every treatment i worked my ass off to get him access to (some tx's in stage 3 clinical trials). Having had some wonderful physicians who cared for both my brother and father meant the world to my family and I. Even though we lost their battles, it has always been a comfort to remember the caring and personable people who cared for them while they were ill and grieved right along side us when they passed.

I try to remember how powerful kindness and listening to your patients can be everyday and make it the foundation of my clinical practice. I have had so many people thank me for being "different than most other doctors" I sometimes will share that I am this way bc i have sat in the chair next to them and how it taught me great pain and loss, but that it showed me how to be a physician who cares.